As most of you know, several months back, my Primary Care Physician diagnosed me with having Reflex Sympathetic Dystrophy. Although he (and I) was certain, he sent me to see a specialist at UAB. I walked in knowing my PCP was right, but had this shred of hope that he was wrong. I was hoping to hear the symptoms were from my back surgery, gone wrong, and it could be fixed.
The specialist confirmed the leg diagnoses, known now as Complex Regional Pain Syndrome (a chronic progressive disease characterized by severe pain, swelling and changes in the skin). I asked bluntly, will this get worse? Will it spread? He shook his head yes to both questions. And then, palms down, he brought his hands up to his waist and said, “most likely, to here.”
He kept spurting out so many words and names of conditions I finally asked him to write them down. I walked in with a heavy load and when I left I felt that load would squash me at any moment.
The combination of my illnesses and disorders are GIANT factors working against me.